My
daughter, Rachel, has a genetic condition that is known as Smith-Magenis
Syndrome. This results in certain
challenges both physically and mentally, including diminished intellectual
capabilities.
Her
condition might lead some people to conclude that Rachel has very little, if
any, meaningful contribution to make to our world. I certainly understand and would not argue
with the fact that her challenges limit the kinds of contributions she will be
able to make in life. For example, she
will not offer any new and advanced surgical procedures to the world of medicine—but
frankly none of the rest of us are likely to do that, either.
However,
I would argue that Rachel’s limitations do not mean that she does not contribute
to the world. And, I have found that she
has a way of making contributions to the lives of others that “regular” people
are not likely to make.
For
example, a friend of mine went through a period where he wasn’t at church very
often. One Sunday when he attended a
service, Rachel greeted him with genuine joy and excitement, giving him one of
her patented Rachel mega-hugs. We know these
greetings from Rachel are genuine because if she is not joyful and excited
about seeing someone she, typically, ignores the person.
He has
told me several times that that was one of the most meaningful things that he
experienced at church. I believe part of
the reason it was so meaningful for him is because he knew that the excitement
of seeing him was authentic on her part and because of his appreciation for the
unique person that Rachel is. I would
suggest—based on his comments to me—that was a positive contribution to his
life that no other person could have made.
I will
admit that I have wondered why God made Rachel the way that he did. But I never question whether she is
worthwhile and valuable. She is a
priceless gift of God in my life (while occasionally irritating me, as all
children must do), the lives of my family, and the lives of many who know
her.
I love
her just the way she is.
It’s
important for us not to be too presumptuous about making determinations
regarding which persons are valuable and which persons are not valuable. Some people definitely have greater
capabilities than others but I do not believe they have greater value in God’s
eyes. And God has a purpose for each
one.
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